The National Organization for Rare Disorders is a coalition of patient advocacy groups and the first national nonprofit that ...

In India, 32 patients, diagnosed with this condition by the Centres of Excellence (CoEs), have registered themselves with the ...

The FDA has made some modest efforts, but it needs an internal organization that understands and would be an aggressive ...

A study led by UCL found that individuals with rare diseases were five times more likely to die from Covid-19 than the ...

Watch this brave little girl deal with a very tough start to life after being diagnosed with an extremely rare lung disease. Jewel Hee from Colorado Springs, Colorado, USA, supported her daughter, ...

I thought, wow. So, it’s not about the kid. It’s not about saving her life,” Adaline Deal’s mom said of the decision to deny ...

Add articles to your saved list and come ... treat a major disease are being handed out to patients this week after a small, independent team of Australian scientists won a rare approval ...

Rhys Bellinge, 45, appeared in Perth Magistrate’s Court this morning via a bedside hearing, accused of crashing his Jaguar ...

Government of India has provided tax relief on life-saving drugs and medicines used for rare diseases. As per the Ministry of Finance’s response in Rajya Sabha on February 11, 2025, basic customs duty ...

Another six life-saving medicines are to be added to the list attracting concessional customs duty of 5%. “To provide relief to patients, especially those suffering from cancer and rare disease ...

Carol Baldwin, Local Journalism Initiative Reporter, Wakaw RecorderIn Canada, 1 in 12 people live with a rare disease and for most, the cost of treatment is ...